Submitted Stories

BRIANNE'S STORY

Our daughter is 28 months. And when she was born we thought she was a healthy little girl. But 4 months later we had to life flight her down to children's mercy because she had a gagging reflux so bad that her oxygen level would go down.

Read More

PEYTON'S STORY

My fiance, Jason, and I had a baby boy, Peyton. He was born October 19 2007. After our first sonogram, we knew there was an problem, but they didn't elaborate until the next one. We learned when I was about 2 months pregnant that Peyton had Congenital Heart Disease.

Read More

AMELIA'S STORY

On April 9, 2009 my sister, Kathryn Braun, gave birth to a beautiful baby girl, Amelia Ryelle, weighing 6lbs 12oz. She was a thriving infant consuming 3 to 4 ounces at a time and gaining weight. We never thought anything was wrong with her and neither did her family practice physician. As a couple of weeks went by, friends and family commented that Mimi's skin looked gray and dusky.

Read More

PORTER'S STORY

My name is Tyler Boyles and my wife's name is Jenna. On July 6 2009 we gave birth to our second son Porter Lee Beckham Boyles he was 6 lbs 12ozs. We had an over night stay and everything seemed textbook. After a week or so of being home we noticed our little man wasn't eating well.

Read More

BRODY'S STORY

I have a 2 1/2 month old son, Brody who was born with Marfans Syndrome. This condition has long fingers and toes, really tall lanky people. It also has a heart problem - his aortic root is growing faster than what it should plus he has a pretty severe arrhythmia.

Read More

BEE'S STORY

We are just beginning a long and emotional journey. I am 27 weeks pregnant with our second child, a little girl. After our routine ultrasound in July, we were referred to a perinatalogist in order to discover the nature of an extra cavity next to the baby’s heart.

Read More

SARAH'S STORY

When my daughter was a baby I was told that she had a hole in her heart, but that it was small and nothing to worry about. Well, when she turned 18 she became pregnant and the OBGYN didn't like the sound of her heart and her first echo was performed.

Read More
1 2