Submitted Stories

KARSYN'S STORY

My name is Anna, I am Karsyn's Grandma. Karsyn, son to Stephany and Shane, was born September 2017 with rare Congenital Heart Defects (CHD). He was diagnosed as Tetralogy of Fallot with Pulmonary Atresia and MAPCAS. While many children are born with CHD, Karsyn's condition is complex and requires open heart surgery usually within the 1st year. His heart is working very hard and surgery is Karsyn's only chance at survival.

MAKENNA LYNN'S STORY

On August 27, 2015 our daughter Makenna Lynn was born. She was born at 39w, a tiny little thing (5lb 1oz 18") but perfectly healthy, or so we thought. We had gotten 3 ultrasounds while I was pregnant due to her being small, but they ended up concluding everything was fine and she was just a small baby.. never spotting the large VSD.

CLAIRE'S STORY

On the 4th May 1989 my daughter Claire was born in Port Elizabeth with Asplenia syndrome - I was told she would not survive - today after 3 open heart operations, one of which was the fontane by Prof Kingsley and months in and out of hospital with arithmia and infections.

JAMES WAYNE HART'S STORY

James Wayne Hart was born 06/08/15 with multiple heart defects, the most serious being very rare double outlet right ventricle meaning both main arteries of the heart are coming from the blue blood side.

HALEY ELIZABETH'S STORY

Meet Haley Elizabeth :) When Haley was born her brother, dad and I were so overjoyed with excitement, after nine months of waiting we finally had our little princess in our arms to kiss and to love. The excitement quickly turned to disbelief, heartache and confusion when we were told at 2 days old we were being referred to a cardiologist specialist.

DAVID'S STORY

David was born on June 6 of 2013. He was born full term and very healthy. At the beginning he wasn’t eating very well and we still had to do an ultrasound on his heart because we needed to make sure everything was well from what they saw on the previous ultrasounds... at one day old they did an ultrasound on his heart and found out he had a heart defect right there they intubated him and flew him over to Vegas...

ETHAN'S STORY

I'm sure most parents will tell you that things are easier the second time around - and in our case that was what we expected with our second son, Ethan.

CORAH'S STORY

My husband and I went to our routine OB appointment in May 2010. An ultrasound was done to check the development of the baby and hopefully determine the gender. We were told that they could not see all four chambers of the heart.

KEITH'S STORY

On October 22, 2006 my husband and I welcomed our first little miracle into this world. Keith William was born on time and under the presumption that he was completely healthy; with the exception of a minor heart murmur.

ISABELLE'S STORY

Isabelle Ellis was born in February of 2005 with a complex set of heart defects that made her chance of survival non-existent without a series of life-saving surgeries, the first of which was performed on Isabelle in that March.

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